Duchenne Family Support Group charity eCards

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Charity Registration No. 1128653

About Duchenne Family Support Group

We are a very small charity that supports families across the UK with a child or young adult with the life-limiting condition Duchenne Muscular Dystrophy. This disease means that the affected person is in a wheelchair by the age of 9 or 10 usually, and in the later stages are reliant on electric wheelchairs, and have cardiac and respiratory problems amongst other things. However many go on to live independently and achieve at university although needing a lot of support in care. We support via a helpline, newsletter and in normal times we have days out and holidays that we subsidise where families can meet up and talk to others in the same situation.

Learn more at www.dfsg.org.uk