Northern Ireland Rare Disease Partnership We are “Not for Profit” Company and a NI Registered Charity. We provide support to any individual, carer or family member of those living with rare conditions. We also bring together those living with a rare disease and organisations representing them, clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policymakers and academics to ensure that the rare disease voice is heard.
Our Vision is that no one is disadvantaged because of the rarity of their condition and every donation, no matter how small helps us to support their under represented community. Many thanks!
