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About Alport UK
Alport UK is a patient-led organisation dedicated to empowering individuals and families living with Alport Syndrome to enjoy the best possible quality of life.
Drawing on our continuous learning from and collaboration with individuals, families and the scientific community, we aim to facilitate a support and information network for all those affected by Alport Syndrome. Alport UK collaborates with the scientific community, researchers, doctors, clinicians, academics, pharmaceutical companies and other national patient groups on an international basis. Within this framework, we can work to create a strong, united voice to advocate investment in the research needed into Alport Syndrome.
Learn more at http://www.alportuk.org