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Charity Registration No. 1002918


SOFT UK was founded by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Aim to provide the most up-to-date, relevant information on Trisomy 13 and Trisomy 18.
Support families at every stage of their journey; through pregnancy, when caring, after a loss, expecting a new baby and beyond.
Raise awareness about Trisomy conditions on our communities.

Learn more at