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Charity Registration No. LDUK

About Lyme Disease UK

Lyme Disease UK is a UK registered charity providing patient support and raising awareness of Lyme disease. Our mission is to make people aware of the dangers of tick bites to reduce the number of UK residents facing the devastating consequences of being misdiagnosed and untreated for Lyme disease.

We are the largest patient support network in the UK with over 10,000 members in our Online Community on Facebook. We are stakeholders in the NICE Lyme disease guideline and we have also been involved in other processes as stakeholders including the independent government reviews on Lyme disease. Our charity is also listed as a resource on the NICE website as well as the RCGP website.

Our goals are to ensure that:

● Every UK household is aware of the risk of tick bites and symptoms of Lyme disease and that people understand how best to protect themselves by using effective prevention methods.
● Support is provided to all UK residents who have been recently bitten by ticks as well as to those already suffering with Lyme disease.
● All front line medical staff in the UK are aware of Lyme disease and that at least one doctor in each medical team has completed the RCGP online course on Lyme disease. All medical staff should also be aware of the NICE guideline and RCGP toolkit.
● The public are aware of the NICE Lyme disease guideline and the recommended treatment as well the guideline’s limitations due to large gaps in research and the evidence base on which the guideline was built.

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